I am a TN IBC, stage III, I had two sentinel nodes (I believe that is what they called them) that showed cancerous. I was on vacation in Florida with my family when on December 30th I noticed my right breast looked bruised. I made an appointment with my doctor when we returned. Within 3 weeks I was diagnosed, ported up, and starting chemo. I have finished AC and have 5 more Taxol to go with one Carboplatin. I have had extreme fatigue, low counts, missed a couple of treatments because of them, headaches, skin rashes, lost my hair, eyebrows, and eyelashes which now makes my eyes bothered daily, constipation, loss of appetite, etc, etc, etc. Thankfully no nausea.
When done with chemo I will have a double mastectomy, my ovaries removed, and 6 weeks of radiation. I am also BRCA2 positive, so we are clearing everything out.
I have avoided most of the internet unless I see info that is positive in nature. With a diagnosis like this and enough people with a pity look, I dont need to read the negative. My husband is the researcher and I let him. I have my own job of fighting this disease.
I have two grown daughters 22 and 26 that I am fighting for. They have not been tested yet but will. It is for them this battle is worth fighting to ensure they don't have to go through this, they have options now that we know.
My mother had this same diagnosis many years ago. We lost her 12 years ago after a 5 year fight and other complications. We knew nothing about genetics or anything else really, to me cancer was cancer...not so. And because of that I did not have the preventative options that my girls now will have. And they are young and have medical advances on their side. Because I showed positive for the gene, my sister and brother will be tested, if positive their kids will be tested. There is a reason right there, I can help the rest of my family never have to go through this if at all possible.
I caught mine early as it has not spread anywhere else. I plan to fight and win. I have grandkids I still have to meet. :)
I am thankful to have found this site. I would rather read and talk with those that are going through or have gone through what I'm experiencing. You really don't know, unless you have been there.
-- Milwmama, diagnosed triple negative in January 2016
The opinions expressed in this article are the author's own and do not necessarily represent those of Breastcancer.org nor are they intended as a substitute for the medical advice of physicians.